I've been meaning to update this blog forever. Life marches on. I'm expecting baby #3, and have been thinking a lot lately of my experiences with my little FPIES baby. Oh how I hope that nothing like that happens again, but if it does, I know how to handle it, and I'm grateful for everything I learned!
From time to time I get contacted by another FPIES mommy. I did today. I love responding to those emails because someone did it for me when I was in the thick of it. It's nice for Moms to share knowledge too that sometimes eludes the doctors!
Kyle is doing fantastic. He is 2 1/2 and is such a fun little guy. We have trialed both rice and oats at separate times, of course, and we made the decision to do it at home since his reactions were never life threatening in the past. It took a while for us to get there, but he has passed both, and is symptom free!! Hallelujah right?
I will say that I do believe these children have sensitive stomachs. I'm afraid he always will. I still inspect poop when it is yucky, and it frequently is. We still give probiotics to him on a regular basis. He has diarrhea more often than most kids, but he eats anything and everything he wants. Every once in a while when we are out to eat, I think to myself, "Thank goodness we can order..whatever and I don't have to ask any questions".
I am looking forward to having another baby around Thanksgiving time, and it's another boy. I worry about all this food intolerance stuff. I think, "could I go through all of this again?" and the answer is Yes. But, do I want to? No. But, thank goodness I've been there, done that, so to speak, and know that I could tackle it again if necessary. Let's just hope it won't be.
Please keep emails coming. I love hearing from anyone going through this. And, just know, it won't last forever. That's the positive part about living with FPIES.