Saturday, August 13, 2011

Oh Happy Day!!!

I've been meaning to update this blog forever. Life marches on. I'm expecting baby #3, and have been thinking a lot lately of my experiences with my little FPIES baby. Oh how I hope that nothing like that happens again, but if it does, I know how to handle it, and I'm grateful for everything I learned!

From time to time I get contacted by another FPIES mommy. I did today. I love responding to those emails because someone did it for me when I was in the thick of it. It's nice for Moms to share knowledge too that sometimes eludes the doctors!

Kyle is doing fantastic. He is 2 1/2 and is such a fun little guy. We have trialed both rice and oats at separate times, of course, and we made the decision to do it at home since his reactions were never life threatening in the past. It took a while for us to get there, but he has passed both, and is symptom free!! Hallelujah right?

I will say that I do believe these children have sensitive stomachs. I'm afraid he always will. I still inspect poop when it is yucky, and it frequently is. We still give probiotics to him on a regular basis. He has diarrhea more often than most kids, but he eats anything and everything he wants. Every once in a while when we are out to eat, I think to myself, "Thank goodness we can order..whatever and I don't have to ask any questions".

I am looking forward to having another baby around Thanksgiving time, and it's another boy. I worry about all this food intolerance stuff. I think, "could I go through all of this again?" and the answer is Yes. But, do I want to? No. But, thank goodness I've been there, done that, so to speak, and know that I could tackle it again if necessary. Let's just hope it won't be.

Please keep emails coming. I love hearing from anyone going through this. And, just know, it won't last forever. That's the positive part about living with FPIES.

Friday, February 18, 2011

It's been a while....

If anyone is still reading, I'm still around.

I don't frequent the FPIES babycenter board anymore, but FPIES is still a part of our lives. I hope that very soon it won't be.

My son turned two last month. We decided to trial oats at home. We got to day two with no problems, and then BAM! a double ear infection.

Remember my experience with trialing milk the first time? What are the odds he'd get sick again with something on the same week of the trial, again!?

So, the good news is that he has most likely outgrown oats because there were no signs at all of GI issues. YAY! But, we have to re-do the trial. Probably starting next week. We want to trial it for 2 weeks before calling it safe since this was one of his trigger foods! Once he passes that, we'll probably wait a couple of months more, and trial rice once it has been 18 months since his last reaction with it.

So, wish us luck! I feel like this journey is finally ending. So hang in there to all of you that can't feel that way just yet.

Oh, and another great development-He has a veggie he loves and eats! Green Beans!! :)