I had a flashback a couple of nights ago to the FPIES days.
We are getting way more relaxed about the foods we give Kyle now that he has passed dairy and soy. So, we were eating some nachos the other night, and my husband gave him a bite. I kind of gave him the "I don't think you should be doing that" eye and he still went for it. On the chip was a tomato, a black bean, and some cheese, of course.
That night Kyle would not settle to go to sleep. Then about 10:30 pm he woke up screaming for a good half hour. He was arching his back, not wanting to be held, but not wanting to be put down. My husband turned to me and said, "I've never seen him like this" I responded...YES YOU HAVE! Remember??? That night a few months ago we gave him one single pea at dinner? And then later, when we weren't in the thick of it, I reminded him of our previous FPIES days where he was always restless at night, with some sort of tummy ache.
We've been doing so good, that I think we had forgotten that there is anything "wrong" with him.
I am still puzzled as to what it was. I grilled my husband afterward...."do you know exactly what was swallowed?" "did he swallow a tomato, a black bean, what????"
That is the frustrating part to me, the not knowing. If you don't do one ingredient at a time, and then something DOES go wrong, you'll never know really.
All that happened was basically a lot of gasiness, and then he finally settled back down to sleep. I'm wondering if he just experienced his first episode of gas from a good old gas producing food like beans, or if maybe he has a problem with them?
As far as the soy, we are saying he passed, but we didn't do the greatest challenge known to man. We got him to ingest maybe 1 oz. per day for a week of soy milk (which he did not care for), so we are calling it good for now. That might be a little dangerous, but I honestly feel it is going to be OK. Now, we just need to give him some other things that have soy protein as an ingredient. But, I think we are in the clear.
He seems totally fine now.