If anyone is still reading, I'm still around.
I don't frequent the FPIES babycenter board anymore, but FPIES is still a part of our lives. I hope that very soon it won't be.
My son turned two last month. We decided to trial oats at home. We got to day two with no problems, and then BAM! a double ear infection.
Remember my experience with trialing milk the first time? What are the odds he'd get sick again with something on the same week of the trial, again!?
So, the good news is that he has most likely outgrown oats because there were no signs at all of GI issues. YAY! But, we have to re-do the trial. Probably starting next week. We want to trial it for 2 weeks before calling it safe since this was one of his trigger foods! Once he passes that, we'll probably wait a couple of months more, and trial rice once it has been 18 months since his last reaction with it.
So, wish us luck! I feel like this journey is finally ending. So hang in there to all of you that can't feel that way just yet.
Oh, and another great development-He has a veggie he loves and eats! Green Beans!! :)
Showing posts with label food trialing. Show all posts
Showing posts with label food trialing. Show all posts
Friday, February 18, 2011
Thursday, July 8, 2010
Flashback
I had a flashback a couple of nights ago to the FPIES days.
We are getting way more relaxed about the foods we give Kyle now that he has passed dairy and soy. So, we were eating some nachos the other night, and my husband gave him a bite. I kind of gave him the "I don't think you should be doing that" eye and he still went for it. On the chip was a tomato, a black bean, and some cheese, of course.
That night Kyle would not settle to go to sleep. Then about 10:30 pm he woke up screaming for a good half hour. He was arching his back, not wanting to be held, but not wanting to be put down. My husband turned to me and said, "I've never seen him like this" I responded...YES YOU HAVE! Remember??? That night a few months ago we gave him one single pea at dinner? And then later, when we weren't in the thick of it, I reminded him of our previous FPIES days where he was always restless at night, with some sort of tummy ache.
We've been doing so good, that I think we had forgotten that there is anything "wrong" with him.
I am still puzzled as to what it was. I grilled my husband afterward...."do you know exactly what was swallowed?" "did he swallow a tomato, a black bean, what????"
That is the frustrating part to me, the not knowing. If you don't do one ingredient at a time, and then something DOES go wrong, you'll never know really.
All that happened was basically a lot of gasiness, and then he finally settled back down to sleep. I'm wondering if he just experienced his first episode of gas from a good old gas producing food like beans, or if maybe he has a problem with them?
As far as the soy, we are saying he passed, but we didn't do the greatest challenge known to man. We got him to ingest maybe 1 oz. per day for a week of soy milk (which he did not care for), so we are calling it good for now. That might be a little dangerous, but I honestly feel it is going to be OK. Now, we just need to give him some other things that have soy protein as an ingredient. But, I think we are in the clear.
He seems totally fine now.
We are getting way more relaxed about the foods we give Kyle now that he has passed dairy and soy. So, we were eating some nachos the other night, and my husband gave him a bite. I kind of gave him the "I don't think you should be doing that" eye and he still went for it. On the chip was a tomato, a black bean, and some cheese, of course.
That night Kyle would not settle to go to sleep. Then about 10:30 pm he woke up screaming for a good half hour. He was arching his back, not wanting to be held, but not wanting to be put down. My husband turned to me and said, "I've never seen him like this" I responded...YES YOU HAVE! Remember??? That night a few months ago we gave him one single pea at dinner? And then later, when we weren't in the thick of it, I reminded him of our previous FPIES days where he was always restless at night, with some sort of tummy ache.
We've been doing so good, that I think we had forgotten that there is anything "wrong" with him.
I am still puzzled as to what it was. I grilled my husband afterward...."do you know exactly what was swallowed?" "did he swallow a tomato, a black bean, what????"
That is the frustrating part to me, the not knowing. If you don't do one ingredient at a time, and then something DOES go wrong, you'll never know really.
All that happened was basically a lot of gasiness, and then he finally settled back down to sleep. I'm wondering if he just experienced his first episode of gas from a good old gas producing food like beans, or if maybe he has a problem with them?
As far as the soy, we are saying he passed, but we didn't do the greatest challenge known to man. We got him to ingest maybe 1 oz. per day for a week of soy milk (which he did not care for), so we are calling it good for now. That might be a little dangerous, but I honestly feel it is going to be OK. Now, we just need to give him some other things that have soy protein as an ingredient. But, I think we are in the clear.
He seems totally fine now.
Monday, June 28, 2010
Moving On....
My life has been crazy hectic lately. I've neglected the internet, and I actually didn't miss it too much, but I do feel strongly about this blog and keeping it updated to help other Moms out there.
Kyle is doing GREAT! We successfully passed milk the second time. He now has all organic, whole milk in his bottles. This makes me happy, and will hopefully ease the financial strain a little from all that formula! He likes cheese (sort of) and does not like yogurt. My daughter used to DEVOUR the YoBaby stuff, but he won't touch it. Still trying.....
Now, we feel a lot more comfortable with things. We've been re-introducing things he had in the past that we thought were problem foods (not a full blown FPIES reaction, but other weird things going on) and he's been doing fine with those too. Like green beans, for example.
This week we are trialing Soy Protein. I will be glad if he passes this one. We are going to do it the same way we did milk, just a little everyday for a week. We are going to use soy milk to trial. I'll let you know how it goes.
I'm starting to feel like we should just go full steam ahead with everything but rice and oats, but I also don't want to jinx things. It's a constant argument in our house about when/how long, etc. to introduce things. I'm always erring on the side of caution, and my husband always wants to just go for it!
I'll be back in a week and let you know how it goes!
Kyle is doing GREAT! We successfully passed milk the second time. He now has all organic, whole milk in his bottles. This makes me happy, and will hopefully ease the financial strain a little from all that formula! He likes cheese (sort of) and does not like yogurt. My daughter used to DEVOUR the YoBaby stuff, but he won't touch it. Still trying.....
Now, we feel a lot more comfortable with things. We've been re-introducing things he had in the past that we thought were problem foods (not a full blown FPIES reaction, but other weird things going on) and he's been doing fine with those too. Like green beans, for example.
This week we are trialing Soy Protein. I will be glad if he passes this one. We are going to do it the same way we did milk, just a little everyday for a week. We are going to use soy milk to trial. I'll let you know how it goes.
I'm starting to feel like we should just go full steam ahead with everything but rice and oats, but I also don't want to jinx things. It's a constant argument in our house about when/how long, etc. to introduce things. I'm always erring on the side of caution, and my husband always wants to just go for it!
I'll be back in a week and let you know how it goes!
Wednesday, May 19, 2010
Success!
Kyle passed dairy!
I'm a little apprehensive still. The doc gave us the OK on "as much dairy as he wants", but I still feel a reaction could happen. Although, I think it's a slim chance.
Kyle drank 50 ml of whole milk over a one hour period. I convinced the doc that he was OK without an IV. This was a risk I was willing to take because Kyle's FPIES reactions have not been that severe in the past. So, after that, it was just waiting. Lots of waiting.
We stayed in the hospital for 6 LOOOONG hours. But, luckily, we were able to walk around, and that entertained Kyle for most of the day. We ate at the cafeteria for lunch, and he even took an hour and a half nap in the office in his stroller.
We got the OK to trial soy and chicken at home....I feel good about that with the way this trial went. I think it's a little overkill to do it in the office every time. Some kids with more severe reactions need it. And, we will do rice/oats in the office when that time comes after Kyle is 2. I think with milk, it was good to do in the office too since we had no idea what the reaction would be.
Kyle's reaction to rice took several days before vomiting started. I don't think that will be the case with milk, but I'm still going to go slow.
However, I gave him a string cheese for lunch. He gobbled it right up! He loved it!!
We are happy. Yogurt, cheese, and milk...here we come! :)
I'm a little apprehensive still. The doc gave us the OK on "as much dairy as he wants", but I still feel a reaction could happen. Although, I think it's a slim chance.
Kyle drank 50 ml of whole milk over a one hour period. I convinced the doc that he was OK without an IV. This was a risk I was willing to take because Kyle's FPIES reactions have not been that severe in the past. So, after that, it was just waiting. Lots of waiting.
We stayed in the hospital for 6 LOOOONG hours. But, luckily, we were able to walk around, and that entertained Kyle for most of the day. We ate at the cafeteria for lunch, and he even took an hour and a half nap in the office in his stroller.
We got the OK to trial soy and chicken at home....I feel good about that with the way this trial went. I think it's a little overkill to do it in the office every time. Some kids with more severe reactions need it. And, we will do rice/oats in the office when that time comes after Kyle is 2. I think with milk, it was good to do in the office too since we had no idea what the reaction would be.
Kyle's reaction to rice took several days before vomiting started. I don't think that will be the case with milk, but I'm still going to go slow.
However, I gave him a string cheese for lunch. He gobbled it right up! He loved it!!
We are happy. Yogurt, cheese, and milk...here we come! :)
Monday, May 17, 2010
Milk Challenge Tomorrow
Oh my gosh.
I am so scared for tomorrow.
We are FINALLY doing a milk challenge for Kyle. My sweet baby boy.
Lately, he's been doing so good, we've been giving him lots of new foods, but to get the OK on dairy products would be....well, just amazing!
I am scared of them putting an IV in him, I'm scared that he won't pass the challenge which would be SUPER bad news, and I'm scared of being alone in a doctor's office for 6 hours trying to entertain a 16 month old.
I cannot wait though to give him his first taste of cheese, yogurt and milk. All things which children should not be deprived of!
I am excited for the prospect of no more formula. At $21/can that lasts about 3 days, it's time to get on with it.
I don't know how I'm going to handle it if he doesn't pass though. Please pray for us. This is a big deal for our little family.
I am so scared for tomorrow.
We are FINALLY doing a milk challenge for Kyle. My sweet baby boy.
Lately, he's been doing so good, we've been giving him lots of new foods, but to get the OK on dairy products would be....well, just amazing!
I am scared of them putting an IV in him, I'm scared that he won't pass the challenge which would be SUPER bad news, and I'm scared of being alone in a doctor's office for 6 hours trying to entertain a 16 month old.
I cannot wait though to give him his first taste of cheese, yogurt and milk. All things which children should not be deprived of!
I am excited for the prospect of no more formula. At $21/can that lasts about 3 days, it's time to get on with it.
I don't know how I'm going to handle it if he doesn't pass though. Please pray for us. This is a big deal for our little family.
Monday, May 3, 2010
It's a MYSTERY
Sometimes I feel like a first time Mom all over again with this little, FPIES child of mine. It can be so frustrating.
He is getting bad diaper rash, and mucousy diarrhea again. I think it could be strawberries? But, who really knows. I mean, he eats so many foods now that I just can't pin point it. I try to take things slow and as my previous post mentions, sometimes we don't. But, they start to make such great improvements and then you just go full speed ahead.
Today, he did not really want breakfast or lunch, but then for dinner, he ate this GIGANTIC feast. I swear he ate as much as I did! I am perplexed by these diapers though. I really can't figure them out. Maybe it's the strawberries, maybe not. I'm just tired. Is that bad to say?
I'm tired of studying poo, I'm tired of worrying, I'm tired of my baby boy pointing to the milk carton and whining, and I'm tired of denying him from everything.
It's funny how we have good days and bad huh? Compared to my post a couple of days ago, you'd probably think I was writing about two different kids. But, I'm not.
I'm just writing about one kid that I just can't figure out.
FPIES sucks.
I'm not chickening out of the dairy trial. Nothing is going to stop me from doing it this time!
He is getting bad diaper rash, and mucousy diarrhea again. I think it could be strawberries? But, who really knows. I mean, he eats so many foods now that I just can't pin point it. I try to take things slow and as my previous post mentions, sometimes we don't. But, they start to make such great improvements and then you just go full speed ahead.
Today, he did not really want breakfast or lunch, but then for dinner, he ate this GIGANTIC feast. I swear he ate as much as I did! I am perplexed by these diapers though. I really can't figure them out. Maybe it's the strawberries, maybe not. I'm just tired. Is that bad to say?
I'm tired of studying poo, I'm tired of worrying, I'm tired of my baby boy pointing to the milk carton and whining, and I'm tired of denying him from everything.
It's funny how we have good days and bad huh? Compared to my post a couple of days ago, you'd probably think I was writing about two different kids. But, I'm not.
I'm just writing about one kid that I just can't figure out.
FPIES sucks.
I'm not chickening out of the dairy trial. Nothing is going to stop me from doing it this time!
Friday, April 30, 2010
New Foods Galore
I scheduled a dairy trial for May 18th.
I am sooo excited.I'm to that point where I almost don't know what to do with his food until we pass milk.
I'm so hopeful, and yet so scared of being disappointed. My gut tells me I won't be. That he will pass dairy, and we will blissfully move on to eating cheese, milk, yogurt, etc. and we can stop buying that nasty formula!! Although, he seems to like it OK. I can't stand the smell of it.
Anyway, Kyle has been doing great lately, and we've been kind of crazy with giving him foods. We give him pretty much any fruits now, and don't even bother trialing them. I hope we don't regret that. He has just never reacted to a fruit, so we keep going with that.
Today I gave him Craisins. He didn't go for those.
Oh, and the ham went great! Although, he only liked the organic from Whole Foods. Go figure?
Also, I gave him a ritz cracker today. This will be the first time he has eaten a significant amount of something with soy oil in it. So, I'm not too worried, but I hope it's OK.
Anyway....I'll keep you posted. We're doing good so far.
Plus, he had his 15 month well visit. He is still about 50% for height and weight. So, that is great! Sometimes it doesn't even feel like he is sick. I hope that continues.
Monday, April 5, 2010
Easter Ham
OK, so we decided to get brave and trial a meat. Whew. I was scared. But, my baby boy (who is not really looking much like a baby anymore) tried ham for the first time on Sunday. No reaction....we are still doing good today. No reaction after lunch either where he gobbled that ham right up. Things are looking good!!
I'll keep you posted.
I'll keep you posted.
Tuesday, March 16, 2010
What next?
I feel like I'm at a standstill. I don't know where to go from here. Kyle seems to be doing good on corn, wheat, and eggs, but we need to trial something else this week. I need to see a nutritionist, I need to get him to learn how to use a sippy cup, and I probably need to move him to a toddler formula. *sigh*
I just don't know where to go next? I don't know what food to try next??? I got a little spooked by his bloody stool episode, so, now I've just been sticking with the staples. Wheat, corn, eggs, fruit.
I think I might try a bean next. Any suggestions?
I just don't know where to go next? I don't know what food to try next??? I got a little spooked by his bloody stool episode, so, now I've just been sticking with the staples. Wheat, corn, eggs, fruit.
I think I might try a bean next. Any suggestions?
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