Possible Reaction?

I'm really TRYING to remain positive and calm, but I'm really stressed too.

As you know, we trialed Dairy for the first time in the hospital on Tuesday (the 18th). DS only had 50 ml of whole milk that day. We stuck around for 6 hours and nothing happened. When we left, I asked the allergist...so what now? How do we proceed? He said, "Give him as much as he wants starting tomorrow" I responded, "Really? As much as he wants?" And he said, yes.

So, although I had my doubts, we started to offer him more dairy the next day. He had a string cheese....still nothing. Then, some milk in his bottle instead of formula, nothing. So, the next day, we tried yogurt. Still doing great. No signs of fussiness, loose stool, or not sleeping well. He was doing great!

Fast forward to day 5, which was yesterday (Saturday) morning. He was fussy as soon as he woke up, but had slept through the night great. I fed him his normal breakfast of cream of wheat with fruit. Waited about 45 minutes to give him a bottle of milk. He only drank about 4 oz. Still kind of fussy, walked into the other room, and projectile vomited all over the floor!!! I immediately thought, crap. My husband said not to worry, maybe he just ate to much. We cleaned him up, but he was extremely fussy after that. Wanting to be held non-stop, and not a happy guy. About 2 hours later, we decided to try and give him a very light lunch. He ate a little bit of ham and some fruit, but was obviously tired and not wanting to eat. Still fussy. So, we put him down for his nap with his formula. He wouldn't drink it. Then, after being in his crib just a few minutes, he vomited everything up again. Then, he did fine the rest of the day. Still very fussy, but no more vomiting. We obviously stopped all dairy that morning. Then, he ate a TINY bit of dinner, drank his whole bottle at bedtime, and went to bed. When he woke up in the morning, I went to get him and he had vomited in his sleep at some point.

It's the weekend, so I can't talk to the allergist, but I'm hoping this is a stomach bug. However, I just don't think so. My gut tells me it is the milk. I know it seems crazy when it didn't start until day 5, but Kyle's first reaction to rice was similar. Keep us in your prayers, and I'll keep you posted!

Success!

Kyle passed dairy!

I'm a little apprehensive still. The doc gave us the OK on "as much dairy as he wants", but I still feel a reaction could happen. Although, I think it's a slim chance.

Kyle drank 50 ml of whole milk over a one hour period. I convinced the doc that he was OK without an IV. This was a risk I was willing to take because Kyle's FPIES reactions have not been that severe in the past. So, after that, it was just waiting. Lots of waiting.

We stayed in the hospital for 6 LOOOONG hours. But, luckily, we were able to walk around, and that entertained Kyle for most of the day. We ate at the cafeteria for lunch, and he even took an hour and a half nap in the office in his stroller.

We got the OK to trial soy and chicken at home....I feel good about that with the way this trial went. I think it's a little overkill to do it in the office every time. Some kids with more severe reactions need it. And, we will do rice/oats in the office when that time comes after Kyle is 2. I think with milk, it was good to do in the office too since we had no idea what the reaction would be.

Kyle's reaction to rice took several days before vomiting started. I don't think that will be the case with milk, but I'm still going to go slow.

However, I gave him a string cheese for lunch. He gobbled it right up! He loved it!!

We are happy. Yogurt, cheese, and milk...here we come! :)

It's a MYSTERY

Sometimes I feel like a first time Mom all over again with this little, FPIES child of mine. It can be so frustrating.
He is getting bad diaper rash, and mucousy diarrhea again. I think it could be strawberries? But, who really knows. I mean, he eats so many foods now that I just can't pin point it. I try to take things slow and as my previous post mentions, sometimes we don't. But, they start to make such great improvements and then you just go full speed ahead.
Today, he did not really want breakfast or lunch, but then for dinner, he ate this GIGANTIC feast. I swear he ate as much as I did! I am perplexed by these diapers though. I really can't figure them out. Maybe it's the strawberries, maybe not. I'm just tired. Is that bad to say?
I'm tired of studying poo, I'm tired of worrying, I'm tired of my baby boy pointing to the milk carton and whining, and I'm tired of denying him from everything.
It's funny how we have good days and bad huh? Compared to my post a couple of days ago, you'd probably think I was writing about two different kids. But, I'm not.
I'm just writing about one kid that I just can't figure out.
FPIES sucks.
I'm not chickening out of the dairy trial. Nothing is going to stop me from doing it this time!

New Foods Galore

I scheduled a dairy trial for May 18th.

I am sooo excited.
I'm to that point where I almost don't know what to do with his food until we pass milk.
I'm so hopeful, and yet so scared of being disappointed. My gut tells me I won't be. That he will pass dairy, and we will blissfully move on to eating cheese, milk, yogurt, etc. and we can stop buying that nasty formula!! Although, he seems to like it OK. I can't stand the smell of it.
Anyway, Kyle has been doing great lately, and we've been kind of crazy with giving him foods. We give him pretty much any fruits now, and don't even bother trialing them. I hope we don't regret that. He has just never reacted to a fruit, so we keep going with that.
Today I gave him Craisins. He didn't go for those.
Oh, and the ham went great! Although, he only liked the organic from Whole Foods. Go figure?
Also, I gave him a ritz cracker today. This will be the first time he has eaten a significant amount of something with soy oil in it. So, I'm not too worried, but I hope it's OK.
Anyway....I'll keep you posted. We're doing good so far.

Plus, he had his 15 month well visit. He is still about 50% for height and weight. So, that is great! Sometimes it doesn't even feel like he is sick. I hope that continues.